 | JjrkCh Please come & RT: June 4-6 in Grantsville MD http://t.co/2uYkCGgKua #Cinderblocks2 #ptsafety #essure #meshdevicenews Woodstockburningmanish 5/16/15, 1:03 PM |
Showing posts with label The Walking Gallery. Show all posts
Showing posts with label The Walking Gallery. Show all posts
Saturday, May 16, 2015
Please Come to Grantsville, MD #cinderblocks2
Friday, April 10, 2015
Apply for a $500 Patient Travel Scholarship to June 4-6 Partnership WITH Patients in Grantsville, MD
More Patient Travel Scholarships!
What does the “Cinderblocks2: The Partnership with PatientsContinues” conference (in Grantsville, MD pop. 825) and Doctors 2.0 & You conference (in Paris, France pop. 2 million) have in common?
Both events are focused on innovation and better communication within healthcare.
Doctors 2.0 has the over arching goal of identifying the ways in which the inclusion of health 2.0 tools and social media platforms can improve care.
Cinderblocks2 is a mash up of art, activism, medicine, social media, HIT, patient rights and fire-dancing. It is sort of like if Burning Man met healthcare.
Both events were founded and are organized by two powerful women:
As for Cinderblocks, I am Regina Holliday. Sometimes called the Rosa Parks of Healthcare. I graduated Sapulpa high school in Oklahoma. (GO Chieftains!) I worked retail for 16 years before my loving husband Fred died of cancer in 2009; then I became a patient rights activist and artist. I am a keynote speaker, a health information technology change agent and am currently creating The Walking Gallery Center for Arts and Healing in Grantsville, MD.
Both events are on the same days!!!
Doctors 2.0 is on June 4-5, 2015. Cinderblocks2 is on June 4-6,2015. Now some conference planners would be shooting eye daggers at each other over that, not Denise and I. We are all about spreading the love.
The most important thing both events have in common is that they will benefit from Patient Travel Scholarships issued by the Society for Participatory Medicine!
In 2012, The Society for Participatory Medicine created a patient travel fund so they could award ten $500.00 patient travel scholarships. These were issued to patients so they could afford to attend Cinderblocks1 in Kansas City. We crowdfunded the money and we asked for direct donation to the site. We were successful thanks to many kind donors.
When Denise pointed out that our events were on the same days she said it would be great if we could connect them in some way, so we decided we are going do some live streamed interviews between the two conferences. But why stop there? I said that the Society for Participatory Medicine (#S4PM ) was going to provide patient travel scholarships once again for Cinderblocks, would she like to include Doctors 2.0 in the competition? She said yes! #S4PM said yes, they could issue awards for either event!!!
SO…. One day after I announce that HIStalk is epically cool and issuing travel scholarships for HIMSS,
I am announcing that the Society for Participatory Medicine will issue $500.00 Patient Travel Scholarships to attendees of Doctors 2.0 or #Cinderblocks2.
How do you enter?
You must post a blog entry by March 31, 2015 NOW EXTENDED to April 20, 2015 explaining why you want to go to either Doctors 2.0 or Cinderblocks2 and why a patient travel scholarship is needed.
You must send a link to the post to me by either twitter or facebook prior to March 31, 2015 NOW EXTENDED to April 20, 2015 If you do not have a blog, please send me your post as an attachment and I will find a blog you can post on as a guest blogger.
You must also encourage people to donate to the travel fund. These scholarships will come from donations to the fund. I will do my best to encourage companies to sponsor folks but I have found when it comes to patients many small donations add up. (Below is just a screen shot you must go here to donate.)
How will you be judged?
We will judge entries based on writing ability and need. We will announce the winners on March 31, 2015 April 24, 2015. Payments will be issued after the conference events.
Responsibilities of the winners:
You will need to attend the conference of your choice. We encourage you to use social media during the conference. We will need you to post a report of your experience on a blog. After these responsibilities are fulfilled, the Society for Participatory Medicine will issue the $500.00 scholarships.
It is sure a great time to be a patient activist! Spread the word and good luck!
________________________________________________________________________________
Joleen Chambers: application for #S4PM scholarship
I want to attend because I will meet with other effective patients/advocates and healthcare leaders who are at the forefront of progress in providing the right healthcare at the right time for those who need it most. Patients who have been harmed are provided a unique forum to speak of their experience and share what policies and procedures need to be legislated and/or adopted to PREVENT harm of others. In sharing there is healing and validation. It is essential to take responsibility for our own health and work together toward public health of our community and nation. Healthcare spending is now 1/5 of our economy and 400,000 preventable deaths occur because of hospital medical errors annually. Cinderblocks convenes a diverse group of activists that exponentially shares new information and ideas and will have the greatest impact on how healthcare is delivered in the future. I want to contribute and participate!
I support the costs of my patient advocacy (beginning in 2009) with my own personal funds. Travel to MD from TX and hotel and food will exceed the $500 scholarship.
Sunday, July 29, 2012
Regina Holliday keynotes in Australia!
A 'patient harm' advocate keynotes in Australia!
Regina Holliday is a young mother of two sons who is tirelessly working to make sure that all patients have access to their medical record. Her husband's death was fraught with medical missteps and gaffs that were hurtful and altogether preventable. It is her mission that these health system errors are corrected.
She is now in Sydney, Australia to keynote the Health Informatics Conference.
While she is working for us, let us overwhelm her with donations to her favorite causes!
Provide travel/conference cost support for patients and their advocates.
Please purchase her new book The Walking Wall: 73 Cents to The Walking Gallery
Partnership With Patients in Kansas City, MO September 21-23, 2012
Regina Holliday is a young mother of two sons who is tirelessly working to make sure that all patients have access to their medical record. Her husband's death was fraught with medical missteps and gaffs that were hurtful and altogether preventable. It is her mission that these health system errors are corrected.
She is now in Sydney, Australia to keynote the Health Informatics Conference.
While she is working for us, let us overwhelm her with donations to her favorite causes!
Provide travel/conference cost support for patients and their advocates.
Please purchase her new book The Walking Wall: 73 Cents to The Walking Gallery
Partnership With Patients in Kansas City, MO September 21-23, 2012
Tuesday, July 24, 2012
Regina Holliday/Mayo Scholarship & Medical Device Safety
Friday, July 20, 2012
Tutorial: Mayo Scholarship voting
Please vote daily until August 4, 2012. Heres how:
Your three action items are in RED. You must go to the Mayo website (live link provided!) to vote-this is just a tutorial on this page.
Your three action items are in RED. You must go to the Mayo website (live link provided!) to vote-this is just a tutorial on this page.
Joleen C. – Scholarship Contest
Essay
Editor’s Note: Joleen C. is a patient/caregiver who
submitted the following essay as part of the Mayo Clinic Center for Social
Media Patient, Caregiver
Scholarship Contest. To vote, simply use
the Facebook “Like” or Twitter “Tweet” buttons at the bottom of each post to
share or leave a positive comment. The top vote-getters will be finalists.
Login, “Like” Twitter & Post: When the Medical Device
Safety Act is passed by Congress and the Charter of the FDA is amended to
include voting Patient Representatives on the medical device panel (as in
pharmaceuticals), social media will be able to claim a large part of the
victory.
Four years ago I began handling phone, mail and other
correspondence for a family member who experienced early failure of a joint
replacement implant. Internet research revealed the medical and legal
purgatory of thousands of joint replacement implant patients. Navigating
the medical system (for a disabled person prescribed maximum dose painkiller
and living 1,000 miles apart) is challenging but not uncommon situation for
many caregivers, I learned. Because the root of the problem was
intractable (poor federal public policy) my role transitioned to unpaid
full-time advocate. I applied and was selected in September 2010 to attend the
FDA Patient Representative workshop, which expanded my advocacy to all patients
with failed implanted medical devices.
My stated goal is to help patients with failed devices access
the medical care that they require and to work toward the conclusions of the
Institute of Medicine’s 7/29/2011 report. It advised the FDA to restrict the
use of FDA 510(k) approvals for implanted devices and provide a post-market UDI
national registry that would be accessible to patients and their medical
providers.
This quest prompted me to join with a number of effective
advocacy organizations such as The Society for Preventative Medicine, Consumers
Union and SpeakerLink. I created a blog (http://fida-advocate.blogspot.com) and regularly
participate on FaceBook, Twitter (@JjrkCh) and LinkedIn. I
have testified twice at FDA/CDRH Town Hall meetings and have traveled from my
home in Dallas, TX to Minnesota, Washington, DC -4 times-, San Francisco, CA, Irving
& San Antonio & Austin, TX in my role as advocate. Recently,
financial limitations prevented me from attending Regina Holliday’s The Walking
Gallery and the HDI Forum in Washington, D.C. (both with registration complete)
so I participated virtually on a webinar.
In my work toward the goal of safer and more effective implant
devices I would value and benefit from discussions with trained social media
professionals and other advocates. I wish to elevate my advocacy skills
and clarity of purpose so that I capably represent the patients who have
been harmed and are often unable to travel or spare time/money for this
endeavor. Exposure to new ideas/attitudes would refresh and enhance my
implementation of more targeted social media communications. My advocacy
includes educating the public, the device industry, administrators and
legislators about federal public policy and legislative changes that would
strengthen patient safety and reduce patient harm.
I appreciate that Mayo Social Media has many qualified
applicants for these three scholarships. Thank you for your consideration
and this valued opportunity to communicate via social media! – Joleen
Chambers
Select TWEET button. Select 'LIKE' button.
Read to the bottom of all comments and leave your COMMENT and press POST COMMENT.
(I am now ranked at #5 and I must be #3 to be selected. It is very possible with your help and the help of your followers! Thank you so much!)
Please vote daily until August 4, 2012.
http://socialmedia.mayoclinic.org/2012/07/16/joleen-c-scholarship-contest-essay/
http://socialmedia.mayoclinic.org/2012/07/16/joleen-c-scholarship-contest-essay/
Tuesday, July 10, 2012
Partnership WITH Patients Summit
http://partnershipwithpatients.com/
http://partnershipwithpatients.com/blog/
Partnership With Patients
Summit
Friday, Sept 21, 2012 at 6 PM - Sunday, Sept 23, 2012 at 4 PM
Kansas City, MO
Event Details
This conference is two-fold in its
mission. We will be working on strategies for a grass roots support the
Partnership for Patients campaign. We will also help enable patients by
providing a place to network, learn and grow as patient advocates that focus on
health policy. You can read more about this on our website
The funding model for this event is the
STONE SOUP method. Please give what you can and take from this event the
energy you need.
We have no federal funding and no
grants. Cerner has graciously agreed to provide the space for our event
in their educational building. The Society for Participatory medicine is
our non-profit partner. They have agreed to create a Patient Travel
Scholarship Fund. They will accept donations for this purpose and will
issue grants. The hope being that this fund will grow beyond this one
event and help patients attend other conferences in the future.
We are looking for sponsors to help
defray overall costs as well as providing scholarships to patients for travel
and lodging. This summit will be a moment of true cooperation with
venders, organizations, providers and patients all coming together to advocate
for positive change. If you purchase a ticket here it covers attendance
at this conference on Friday night, Saturday and Sunday. You will need to
make travel and lodging arrangement in addition. A block of rooms have
been reserved at
The Marriott Downtown Kansas City
200 West 12th Street. Kansas City,
Missouri 64105
Please call 1 (816) 421-6800 to book your room at the conference rate.
Agenda:
Attendees must attend at least one session in all three
tracks
September 21, Friday night
would be a meet and greet with a few speeches. Gathering of
#TheWalkingGallery Light refreshments.
September 22, Saturday begins
with breakfast in exhibition space, Opening Keynote, Panel Presentation from
the Society for Participatory Medicine, 4x4 presentations from our sponsors,
break outs in multiple tracks with different levels of information :ie
101 level, 102 level…
Attendees must attend at least one
session in all three tracks
Track 1: HIT/Health Policy
Meaningful Use/ Cerner Experience
Theatre/ ACO/HIE/ Blue Button/ Patient Portals
Track 2: Patient Quality/Safety
Paticipatory Medicine, e-Patients, End
of Life Care, Palliative Care, Healthcare-Associated Infection, Types of
Medical Harm, Adverse Events, Safety Concerns About the Electronic Medical
Record, History of Patient Advocacy, Partnership for Patients, Quantified Self,
Gamification
Track 3: Media and the Message
Social Media/Activism through the Arts/
Public Speaking/
Evening: Ignite format speeches
September 23, Sunday: Two tracks
Healthcamp unconference
Honing your message:
for the patient speaker who needs more experience and for mentors who wish to
help them!
Funding/Tickets:
Sponsorship levels:
Diamond Cinder Block
5,000 level
Regina Holliday will create a 24x36
canvas during 2012/2013 Partnership for Patients campaign year for this sponsor
Recognized from the stage during opening
keynote
4x4 Presentation
Limited edition print of conference
painting
Admission for 1
Table in exhibition hall
Logo on our website
Logo on thank you signage
Golden Cinder Block:
$3,000 level
Regina Holliday will create a 18x24
canvas during the 2012/2013 Partnership for Patients campaign year for this
sponsor
Recognized from the stage during opening
keynote
4x4 Presentation
Limited edition print of conference
painting
Admission for 1
Table in exhibition hall
Logo on our website
Logo on thank you signage
Cinder Block Level:
$1,000
Recognized from the stage during opening
keynote
Limited edition print of conference
painting
Admission for 1
Table in exhibition hall
Logo on our website
Logo on thank you signage
4x4 Level
$500
Admission for 1
Table in exhibition hall
Logo on our website
Logo on our thank you signage
2x4 Level:
$250
Admission for 1
Logo on our website
Logo on our thank- you signage
Partner Level:
$100.00
Attendee who does not self-define as
patient
Patient Level:
$50.00
Attendee who does self-define as patient
Tuesday, June 12, 2012
Australian conference: Patients Included 'on the marquee'!!!
"Health
Informatics - Building a Healthcare Future Through Trusted Information"
Australia's Health Informatics Conference July 30- August 2, 2012
Sydney Convention and Exhibition Center.
will focus on consumers, practitioners, researchers and industry.
Regina Holliday, Patient Artist Advocate
Regina began painting a series of murals
depicting the need for clarity and transparency in medical records. This
advocacy mission was inspired by her husband Frederick Allen Holliday II and
his struggle to get appropriate care during 11 weeks of continuous hospitalization
at 5 facilities. After his death resulting from kidney cancer on June 17, 2009,
she began painting a mural entitled "73 cents." It depicts the
Holliday family's journey through the medical system. Regina also paints on the
concepts discussed at medical conferences and presents them through a patients
view. In addition she began a health advocacy movement called "The Walking
Gallery."
Monday, June 4, 2012
Patient advocacy gathering: Regina Holliday
LINK
June 4, 2012 5-7pm ET via HealthWorks Collective/Joan Justice
June 4, 2012 5-7pm ET via HealthWorks Collective/Joan Justice
The Walking Gallery at HealthData and Information Week, Wash DC
A Dynamic Live Art Show by Regina Holliday and Friends. Amazing jackets, legoland, and Apparently, Everyone is Talking About Health!
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