Please Come to Grantsville, MD #cinderblocks2

JjrkCh Please come & RT: June 4-6 in Grantsville MD http://t.co/2uYkCGgKua #Cinderblocks2 #ptsafety #essure #meshdevicenews Woodstockburningmanish 5/16/15, 1:03 PM

Apply for a $500 Patient Travel Scholarship to June 4-6 Partnership WITH Patients in Grantsville, MD

More Patient Travel Scholarships!

What does the “Cinderblocks2: The Partnership with PatientsContinues” conference (in Grantsville, MD pop. 825) and Doctors 2.0 & You conference (in Paris, France pop. 2 million) have in common?

Both events are focused on innovation and better communication within healthcare. 

Doctors 2.0 has the over arching goal of identifying the ways in which the inclusion of health 2.0 tools and social media platforms can improve care.

Cinderblocks2 is a mash up of art, activism, medicine, social media, HIT, patient rights and fire-dancing.  It is sort of like if Burning Man met healthcare.

Both events were founded and are organized by two powerful women:

Denise Silber is the founder of the Doctors 2.0 & You conference series. She is a healthcare social media influencer, keynote speaker, and valued strategic advisor. 

Denise was awarded the French Legion of Honor in 2011 for her work in promotingeHealth trans-Atlantically. A Smith College graduate in Government, Denise wasa US Foreign Service Officer before getting her MBA from Harvard BusinessSchool. She then spent 9 years in the pharma industry before creating her own medical communications companies and helping to found digital health start-ups. 

As for Cinderblocks, I am Regina Holliday.  Sometimes called the Rosa Parks of Healthcare.  I graduated Sapulpa high school in Oklahoma. (GO Chieftains!) I worked retail for 16 years before my loving husband Fred died of cancer in 2009; then I became a patient rights activist and artist. I am a keynote speaker, a health information technology change agent and am currently creating The Walking Gallery Center for Arts and Healing in Grantsville, MD.   

Both events are on the same days!!!

Doctors 2.0 is on June 4-5, 2015.  Cinderblocks2 is on June 4-6,2015.  Now some conference planners would be shooting eye daggers at each other over that, not Denise and I.  We are all about spreading the love.

The most important thing both events have in common is that they will benefit from Patient Travel Scholarships issued by the Society for Participatory Medicine!

In 2012, The Society for Participatory Medicine created a patient travel fund so they could award ten $500.00 patient travel scholarships. These were issued to patients so they could afford to attend Cinderblocks1 in Kansas City.  We crowdfunded the money and we asked for direct donation to the site.  We were successful thanks to many kind donors.

When Denise pointed out that our events were on the same days she said it would be great if we could connect them in some way, so we decided we are going do some live streamed interviews between the two conferences. But why stop there?  I said that the Society for Participatory Medicine (#S4PM ) was going to provide patient travel scholarships once again for Cinderblocks, would she like to include Doctors 2.0 in the competition?  She said yes!  #S4PM said yes, they could issue awards for either event!!!

SO…. One day after I announce that HIStalk is epically cool and issuing travel scholarships for HIMSS,

I am announcing that the Society for Participatory Medicine will issue $500.00 Patient Travel Scholarships to attendees of Doctors 2.0 or #Cinderblocks2.

How do you enter?

You must post a blog entry by March 31, 2015 NOW EXTENDED to April 20, 2015 explaining why you want to go to either Doctors 2.0 or Cinderblocks2 and why a patient travel scholarship is needed. 

You must send a link to the post to me by either twitter or facebook prior to  March 31, 2015 NOW EXTENDED to April 20, 2015 If you do not have a blog, please send me your post as an attachment and I will find a blog you can post on as a guest blogger.  

You must also encourage people to donate to the travel fund. These scholarships will come from donations to the fund. I will do my best to encourage companies to sponsor folks but I have found when it comes to patients many small donations add up. (Below is just a screen shot you must go here to donate.) 

How will you be judged?

We will judge entries based on writing ability and need.  We will announce the winners on March 31, 2015 April 24, 2015. Payments will be issued after the conference events.

Responsibilities of the winners: 

You will need to attend the conference of your choice.  We encourage you to use social media during the conference.  We will need you to post a report of your experience on a blog.  After these responsibilities are fulfilled, the Society for Participatory Medicine will issue the $500.00 scholarships.

It is sure a great time to be a patient activist! Spread the word and good luck!

________________________________________________________________________________

Joleen Chambers:  application for #S4PM scholarship

I want to attend because I will meet with other effective patients/advocates and healthcare leaders who are at the forefront of progress in providing the right healthcare at the right time for those who need it most.  Patients who have been harmed are provided a unique forum to speak of their experience and share what policies and procedures need to be legislated and/or adopted to PREVENT harm of others.  In sharing there is healing and validation.  It is essential to take responsibility for our own health and work together toward public health of our community and nation.  Healthcare spending is now 1/5 of our economy and 400,000 preventable deaths occur because of hospital medical errors annually.  Cinderblocks convenes a diverse group of activists that exponentially shares new information and ideas and will have the greatest impact on how healthcare is delivered in the future.  I want to contribute and participate!  

I support the costs of my patient advocacy (beginning in 2009) with my own personal funds.  Travel to MD from TX and hotel and food will exceed the $500 scholarship.  

Blessings and Grace

Application for PWP Travel Scholarship

Steven Baker

Application for Travel Scholarship to the Partnership With Patients Summit 2012

Four years ago (9/29/2008) my implanted right elbow failed and I began advocating for patient rights to access medical records, for identification, registry and post-market research on implanted medical devices.  My efforts brought me in contact with medical device manufacturers, hospital trustees, the state Attorney General, my Congressional Representatives, journalists, consumer organizations and the FDA.  My situation is common to most harmed patients: the medical harm causes permanent disability which disrupts/ruins established careers forcing productive individuals onto fixed income without adequate medical care.  I am committed to attending Partnership With Patients, but a scholarship would be both an endorsement of my efforts and would relieve some of the constant financial pressure I experience.  I intend to continue to work for federal public policy legislation and public health education on this topic and learn from and share with others about social media tools and effective communication strategies that will strengthen the shared mission of protecting all patients from medical harm.

 How Patients Can Apply for a TravelScholarship

Tuesday, August 28th, 2012 at 11:58 pm  

Are you a patient who would like to apply for a travel scholarship to the Partnership With Patients Summit?

We will be awarding 10 scholarships of $500 each. Here are details and how to apply:

Write a (no more than) 500 word essay of why you should be granted a travel scholarship to attend the Partnership With Patients Summit. Why should you be the person who receives the scholarship? What can you offer to the people you connect with? What can they offer you? What do you hope to do with what you learn?

If you have your own blog, then post your essay on your blog, and tweet the link to Regina Holliday
(@ReginaHolliday) or post the link on her Facebook page

If you do not have your own blog, then send the post, contained in an email (not attached) to Regina. She will post your essay here on the Partnership with Patients website.

Submit Your Post By Email!

Deadline for submission is midnight, pacific time, September 8, 2012.

The essays will be reviewed by the committee at the Society for Participatory Medicine and winners will be notified by September 16.

Good luck!

Regina Holliday keynotes in Australia!

A 'patient harm' advocate keynotes in Australia!

Regina Holliday is a young mother of two sons who is tirelessly working to make sure that all patients have access to their medical record.  Her husband's death was fraught with medical missteps and gaffs that were hurtful and altogether preventable.  It is her mission that these health system errors are corrected.

She is now in Sydney, Australia to keynote the Health Informatics Conference.

While she is working for us, let us overwhelm her with donations to her favorite causes!


Provide travel/conference cost support for patients and their advocates.
Please purchase her new book  The Walking Wall: 73 Cents to The Walking Gallery
Partnership With Patients in Kansas City, MO September 21-23, 2012

Regina Holliday/Mayo Scholarship & Medical Device Safety

Regina Holliday's Medical Advocacy Blog: Spare Parts: When I was a young teen I went with my little sister Esther to get my ears pierced at Claire’s Boutique in the local Mall.  If you are n...

Partnership WITH Patients Summit

LINK

http://partnershipwithpatients.com/

http://partnershipwithpatients.com/blog/

Partnership With Patients Summit

Friday, Sept 21, 2012 at 6 PM - Sunday, Sept 23, 2012 at 4 PM

Kansas City, MO

Event Details

This conference is two-fold in its mission. We will be working on strategies for a grass roots support the Partnership for Patients campaign. We will also help enable patients by providing a place to network, learn and grow as patient advocates that focus on health policy. You can read more about this on our website 

Partnership With Patients

The funding model for this event is the STONE SOUP method.  Please give what you can and take from this event the energy you need. 

We have no federal funding and no grants.  Cerner has graciously agreed to provide the space for our event in their educational building.  The Society for Participatory medicine is our non-profit partner.  They have agreed to create a Patient Travel Scholarship Fund.  They will accept donations for this purpose and will issue grants.  The hope being that this fund will grow beyond this one event and help patients attend other conferences in the future. 

We are looking for sponsors to help defray overall costs as well as providing scholarships to patients for travel and lodging.  This summit will be a moment of true cooperation with venders, organizations, providers and patients all coming together to advocate for positive change.  If you purchase a ticket here it covers attendance at this conference on Friday night, Saturday and Sunday.  You will need to make travel and lodging arrangement in addition.  A block of rooms have been reserved at 

The Marriott Downtown Kansas City

200 West 12th Street. Kansas City, Missouri 64105 

Please call 1 (816) 421-6800 to book your room at the conference rate.

Agenda:

 Attendees must attend at least one session in all three tracks

September 21, Friday night would be a meet and greet with a few speeches. Gathering of #TheWalkingGallery  Light refreshments.

September 22, Saturday begins with breakfast in exhibition space, Opening Keynote, Panel Presentation from the Society for Participatory Medicine, 4x4 presentations from our sponsors,  break outs in multiple tracks with different levels of information :ie 101 level, 102 level…

Attendees must attend at least one session in all three tracks

Track 1: HIT/Health Policy

Meaningful Use/ Cerner Experience Theatre/ ACO/HIE/ Blue Button/ Patient Portals 

Track 2: Patient Quality/Safety

Paticipatory Medicine, e-Patients, End of Life Care, Palliative Care, Healthcare-Associated Infection, Types of Medical Harm, Adverse Events, Safety Concerns About the Electronic Medical Record, History of Patient Advocacy, Partnership for Patients, Quantified Self, Gamification

Track 3: Media and the Message

Social Media/Activism through the Arts/ Public Speaking/

Evening: Ignite format speeches 

September 23, Sunday: Two tracks

Healthcamp unconference

Honing your message: for the patient speaker who needs more experience and for mentors who wish to help them!

Funding/Tickets:

Sponsorship levels:

Diamond Cinder Block 5,000 level

Regina Holliday will create a 24x36 canvas during 2012/2013 Partnership for Patients campaign year for this sponsor

Recognized from the stage during opening keynote
4x4 Presentation

Limited edition print of conference painting

Admission for 1

Table in exhibition hall

Logo on our website

Logo on thank you signage

Golden Cinder Block: $3,000 level

Regina Holliday will create a 18x24 canvas during the 2012/2013 Partnership for Patients campaign year for this sponsor

Recognized from the stage during opening keynote

4x4 Presentation

Limited edition print of conference painting

Admission for 1

Table in exhibition hall

Logo on our website

Logo on thank you signage

Cinder Block Level: $1,000

Recognized from the stage during opening keynote

Limited edition print of conference painting

Admission for 1

Table in exhibition hall

Logo on our website

Logo on thank you signage

4x4 Level $500

Admission for 1

Table in exhibition hall

Logo on our website

Logo on our thank you signage

2x4 Level: $250

Admission for 1

Logo on our website

Logo on our thank- you signage

Partner Level:  $100.00

Attendee who does not self-define as patient

Patient Level: $50.00

Attendee who does self-define as patient