Joint replacements are the #1 expenditure of Medicare. The process of approving these medical devices is flawed according to the Institute of Medicine. It is time for patients' voices to be heard as stakeholders and for public support for increased medical device industry accountability and heightened protections for patients. Post-market registry. Product warranty. Patient/consumer stakeholder equity. Rescind industry pre-emptions/entitlements. All clinical trials must report all data.
Please share what you have learned!
Twitter: @JjrkCh

Saturday, October 27, 2012

PCORI webcast today & Sunday October 27,28

PCORI   Patient Centered Outcomes Research Institute
Watch a live webcast of the patient-engagement workshop plenary session “Transforming Patient-Centered Research: Building Partnerships and Promising Models”:

Saturday, October 27, 8:30 a.m.-11:00 a.m. ET

Sunday, October 28, 8:00 a.m.-12:30 p.m. ET
Join the conversation on Twitter by following @PCORI and using the #PCORI hashtag during the workshop.

Provide feedback to PCORI on the workshop topics by email to Feedback received will be considered as PCORI develops a report on the workshop

I will be watching the webcast although I applied to participate in person.   It is important to our community of patients with failed implanted devices that we are represented and participate in the discussion.
Workshop participants will help PCORI establish procedures for identifying research questions, reviewing research proposals for funding, and ensuring patient participation throughout the research process. It is the first in a series of workshops aimed at bringing PCORI’s vision for patient and stakeholder engagement to life.
The workshop’s five topics:
1.             Identifying and Selecting Research Questions
2.            Reviewing Research Proposals for Funding
3.            Matching Patients and Stakeholders with Researchers
4.            Disseminating Research to the Community
5.             Evaluating PCORI’s Patient and Stakeholder Engagement Programs

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