Please listen to this 8 minute audio from NPR.
Hugo Campos is a patient advocate who is working for safer and more effective implanted medical devices on the federal level. Like my brother, he found that there is a "catch" to having an implanted medical devices.
Steven Baker's implanted elbow that failed had two components removed during "revision" surgery and it took him more than a year to establish his ownership of those implanted components. Hugo believes the patient "owns" the information that is compiled by his implanted cardiac device ICD.