FiDA Failed Implant Device Alliance: Application for PWP Travel Scholarship

Joint replacements are the #1 expenditure of Medicare. The process of approving these medical devices is flawed according to the Institute of Medicine. It is time for patients' voices to be heard as stakeholders and for public support for increased medical device industry accountability and heightened protections for patients. Post-market registry. Product warranty. Patient/consumer stakeholder equity. Rescind industry pre-emptions/entitlements. All clinical trials must report all data.

Please share what you have learned!

Twitter: @JjrkCh

Thursday, September 6, 2012

Application for PWP Travel Scholarship

Steven Baker

Application for Travel Scholarship to the Partnership With Patients Summit 2012

Four years ago (9/29/2008) my implanted right elbow failed and I began advocating for patient rights to access medical records, for identification, registry and post-market research on implanted medical devices. My efforts brought me in contact with medical device manufacturers, hospital trustees, the state Attorney General, my Congressional Representatives, journalists, consumer organizations and the FDA. My situation is common to most harmed patients: the medical harm causes permanent disability which disrupts/ruins established careers forcing productive individuals onto fixed income without adequate medical care. I am committed to attending Partnership With Patients, but a scholarship would be both an endorsement of my efforts and would relieve some of the constant financial pressure I experience. I intend to continue to work for federal public policy legislation and public health education on this topic and learn from and share with others about social media tools and effective communication strategies that will strengthen the shared mission of protecting all patients from medical harm.

How Patients Can Apply for a TravelScholarship

Tuesday, August 28th, 2012 at 11:58 pm

Are you a patient who would like to apply for a travel scholarship to the Partnership With Patients Summit?

We will be awarding 10 scholarships of $500 each. Here are details and how to apply:

Write a (no more than) 500 word essay of why you should be granted a travel scholarship to attend the Partnership With Patients Summit. Why should you be the person who receives the scholarship? What can you offer to the people you connect with? What can they offer you? What do you hope to do with what you learn?

If you have your own blog, then post your essay on your blog, and tweet the link to Regina Holliday (@ReginaHolliday) or post the link on her Facebook page

If you do not have your own blog, then send the post, contained in an email (not attached) to Regina. She will post your essay here on the Partnership with Patients website.

Submit Your Post By Email!

Deadline for submission is midnight, pacific time, September 8, 2012.

The essays will be reviewed by the committee at the Society for Participatory Medicine and winners will be notified by September 16.

Good luck!

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Patient Advocacy Events

6/16/2018 'The Bleeding Edge' documentary screening, Dallas, TX
10/31/2017-9/01/2020 Healthcare Safety Advisory Committee member/Texas Health and Human Services Commission (HHSC)
9/18/2017-11/14/2017 $247 Million verdict. Federal jury trial J&J DePuy Ultamet Hip MDL Fourth Bellwether NY plaintiffs, daily observer
9/25/2017 Rally in Washington, DC for the Medical Device Safety Act HR
7/27-29/2017 Leadership Women National Conference, Dallas, TX
6/21/2017 HealthwatchUSA presentation: An Update on PREVENTABLE Medical Device Harm: Indemnity & Injustice
5/18-5/20/2017 Cinderblocks4 Partnership With Patients conference and Walking Gallery, Grantsville, MD
5/6/2017 Bayer Essure (sterilization coils) Harmed Patients National Rally, Dallas, TX
4/27/2017 J&J Shareholders Meeting, New Brunswick, NJ
12/2016 Consumers Union Safe Patient Project Summit, NY
Settled. RESET to 12/5/2016 from 9/12/2016 & 5/2016 & 1/4/2016 Figuero v Boston Scientific, pelvic surgical mesh product liability Dallas, TX
12/1/2016 $1 Billion verdict: J&J DePuy Pinnacle Hip MDL Bellwether Dallas, TX federal jury trial
11/4/2016 HealthwatchUSA conference, Lexington, KY
Now postponed: RESET to 8/15/2016 from 6/3/2016 Mesh Awareness Movement rally 8am to 11am Edwards v. Ethicon Robert C. Byrd federal courthouse in Charleston, WV
6/3-4/2016 Advanced Patient Advocacy Workshop, National Center for Health Research, Washington, DC
5/19-21/2016 Cinderblocks3 Partnership With Patients conference and The Walking Gallery in Grantsville, MD
Date RESET:TBA 4/11/2016 (postponed) Rally in Charleston WV at federal courthouse. 86,000 surgical mesh MDL trials.
3/17/2016 $502M verdict Johnson & Johnson DePuy Pinnacle hip replacement trial in Dallas federal court
2/1/2016 to 2/4/2016 CU Safe Patient Project Summit in Washington, DC
11/13/2015 HealthWatchUSA conference in Lexington, KY @heathwatchusa #HWUSA15
10/21/2015 U.S. Congresswoman Eddie Bernice Johnson (TX-30), Dallas, TX
10/6-10/8/2015 PCORI Annual Meeting, Arlington, VA
9/21/2015-10/5/2015 Cavness v. JNJ Ethicon Prosima surgical mesh trial, Dallas, TX
6/4/2015-6/6/2015 #Cinderblocks2, The Walking Gallery, Grantsville, MD
5/4/2015 and 5/5/2015 Join EssureProblems Rally at the ACOG conference and Bayer headquarters for a rally, San Francisco and Berkeley, CA
1/19/2015 Author John T. James, PhD "The Truth About Big Medicine" Dallas, TX
11/11-13/2014 Consumers Union Safe Patient Project Summit in Yonkers, NY
11/7/2014 HealthWatchUSA conference in Lexington, KY
8/25-9/8/2014 $73M verdict, Salazar v Boston Scientific Obtryx surgical mesh - court observer
6/8-10/2014 Leadership America in Berkeley, CA
5/21/14 HealthWatchUSA webinar with guest presenter Dr. Tom Valuck
4/29/14 WFAA TV interview with Janet St. James regarding FDA announcement of reclassification of surgical mesh to "high-risk".
4/16/14 Mesh Warrior Foundation
3/24/14-4/3/14 Batiste v McNabb/J&J Ethicon jury trial, Dallas TX, plaintiff awarded $1.2M compensatory for defective MCM TVT-O surgical mesh
3/11/14-3/13/14 AAOS conference, New Orleans LA
11/5/13 Consumers Union Safe Patient Project at Columbia University School of Journalism NY,NY
11/1/13 Speaker at HealthWatchUSA, KY
10/17/13, TMIT webinar Unaccountable – The Latest from Dr. Marty Makary AND New Critical Issues for Patient Safety Leaders
9/27/13 Stanford Medicine X
9/18/13 AND 9/19/13 FDA Workshop/Webinar on Patient Preference and Medical Devices TMIT webinar Transforming Healthcare Leadership and Patient and Family Engagement
091113 CMS Deputy Chief Medical Director, Dr. Shari Ling/HealthwatchUSA
9/10/13 and 9/11/13 Mayo Social Media Residency in Dallas/Baylor
8/21/13 Health and the Built Environment webinar (ReportingonHealth)
7/29/13 PfP CMS Affinity Group webinar
7/9/13 The Science of Safety in Healthcare/Johns Hopkins/Coursera
6/13 & 14/13 PCORI Merit Reviewer
6/13/13 FDA 510(k) Public Meeting webinar - 5 minute presentation
06/10/13 CMS Partnership for Patients webinar Product Safety and Resource Management Group Meeting
4/15/13 screening of Regina Holliday's movie '73 Cents' in Austin TX
4/5/13 ProPublica #MedErrorsChat
3/18/13 Dallas #HCSM (Healthcare Social Media) Dallas meet-up prior to The Future of Information-Driven Healthcare webcast (Dell)
2/20-22/2013 Selling Sickness 2013, Washington, DC
1/29/13 University of Texas/Austin QUEST Lifelong Learning: Lana Keeton lecture "Think you are Protected? You're Not. What Doctors Don't Know & FDA is not Telling." Failed Vaginal Surgical Mesh Implants
11/12-14/2012 Consumers Union Safe Patient Summit
10/27-28/2012 PCORI Patient-Centered Outcomes Research Institute (applied/not included)
10/15-19/2012 Mayo Social Media Summit, Rochester MN (webinar-not awarded competitive scholarship)
9/21-23/ 2012 Partnership WITH Patients and HealthCamp, Kansas City MO --
6/4/12 The Walking Gallery (Regina Holliday) Washington, DC
4/26/12 Steven Baker - MN staff of Senator Al Franken
2/6/12 to 2/9/12 Capitol Hill to lobby with Consumers Union Safe Patient Project, visit PCORI
11/19/11 Leadership Texas Annual Meeting workshop - presenter on health and wellness advocacy - San Antonio
11/15/11 Senate HELP testimony: Steven Baker
10/24-26/11 CU Safe Patient Project Summit - Yonkers, NY
9/25-27/2011 Health 2.0 SF conference
9/22/11 FDA/CDRH Town Hall testimony, San Francisco CA
3/10/11 FDA/CDRH Town Hall testimony, Irving TX
1/13/2011 FDA MDUFA (invited but restricted from participation)
09/23-24/2010 FDA/CDRH Patient Representative Workshop
06/09/2010 Consumers Union Activist Summit DC
08/04/2009 Alliance for Justice: Medical Device Safety Act hearings

Thursday, September 6, 2012

Application for PWP Travel Scholarship

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